Ethics of Joining Datasets

SDS 192: Introduction to Data Science

Lindsay Poirier
Statistical & Data Sciences, Smith College

Fall 2022

For Today

  • Reminder: Quiz 1 Due!
  • Mosaic Effect
  • Our Data Bodies Activity
  • Groups for Project 2

Ethics of Joining Data

Timeline of Healthcare Privacy Protections

  • 1996: Healthcare Insurance Portability and Accountability Act (HIPAA) signed into law
  • 1999: HIPAA Privacy Rule put out for public comment; first issued in 2002
    • Establishes standards to secure “protected health information”
    • Limits uses and disclosures of health information
    • Establishes individual rights over protected health information